HKGP greatly values the privacy and the security of every participant’s data. The collection procedure for all personal and genomic data complies with the Hong Kong law, Personal Data (Privacy) Ordinance, Cap. 486, and all data will be kept strictly confidential. 1.Data Storage HKGI will classify your personal information, medical records, and genomic…
Journey Type: Handling Participants' Data
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Use of De-identified Data
To give impetus to the future development of genomic medicine in Hong Kong, HKGI will collaborate with local and international medical and scientific research institutions. Under no circumstance will HKGI disclose your personal information to any researcher without your consent. Your “de-identified” data will only be shared with: Approved local and international research…
Follow-Up on Research Findings
Your de-identified data will be used for various scientific and medical research related to other diseases, not only to the disease you have. Even if researchers make new and important discoveries about your disease or condition, HKGI will not reveal your personal information to researchers without your consent. If the researchers wish to contact…