Your de-identified data will be used for various scientific and medical research related to other diseases, not only to the disease you have.
Even if researchers make new and important discoveries about your disease or condition, HKGI will not reveal your personal information to researchers without your consent. If the researchers wish to contact the participants, they must notify HKGI in compliance with relevant rules and procedures. HKGI will evaluate their request and contact you to ask if you are willing to share your contact information with the researchers. Only when there is a clinical need, for instance, when new research insights might lead to improved treatment plan for the participant, will the Project team grant approval for designated personnel to proceed.