HKGP is a long-term research project. The Project team needs participants’ medical records at various times to enable them to continue with the genomic data analysis. Therefore, consent forms to join the Project must remain valid even in the unfortunate circumstance that participants lose the ability to make decisions on their own or pass away, so that the Project team can access the relevant participants’ medical records, including information added after the loss of decision-making abilities or death.
Should a participant lose the ability to make decisions on their own or have passed away before receiving their report, the Project team hopes to contact a designated person to inform him/her of the participant’s result.
As HKGP participant, you may choose to provide the contact information of the designated person, so that the Project team can try to contact and inform him/her about your result when necessary (including the Main Findings and Additional Findings report).