How will the HKGI ensure my privacy?

HKGP greatly values the privacy and the security of each participant’s data. The collection procedure for all personal and genomic data complies with the Hong Kong law, “Personal Data (Privacy) Ordinance” Cap. 486, and all data will be kept strictly confidential.

 

  • Data Storage

HKGI will classify your personal information, medical records, and genomic data as confidential information, and properly store them in HKGI’s database located in Hong Kong.

 

  • Access to Data

Only authorised designated Project team staff can access and use your medical records and genomic data for analysing your condition and preparing reports. The personal data that can identify you will only be used for your clinical diagnosis and care. You can also make a request to HKGI to access your genomic information.

 

HKGI will share only your de-identified data (data that does not include personal information) for research purpose. Qualified research organisations and researchers must obtain approval from HKGI’s Institutional Review Board to view and to analyse de-identified data on HKGI’s designated platform.