HKGI will access, use and retain your personal data in accordance with the consent form for project participation. Personal data collected will be kept for seven years after the completion of HKGP. The personal data will be deleted afterwards.
According to the Personal Data (Privacy) Ordinance, Cap. 486, participants have the right to keep their personal data confidential, including those kept by or related to HKGP, their collection, retention, control, usage (including for analysis or comparison), transfer into or out of Hong Kong, non-disclosure, elimination and/or the right to handle or dispose of in any manner. If participants would like to access/correct any personal data held by HKGI, they can apply by contacting the genetic counsellor in respective Partnering Centre.
In addition, relevant research ethics committees and the regulatory authority(ies) can access your data for verification of the research, pursuant to the relevant legal or statutory basis, as the case may be.
For any queries, please contact the Office of the Privacy Commissioner for Personal Data to ask about proper handling of personal data.
Phone: (852) 2827 2827
Fax: (852) 2877 7026